Just diagnosed

If you or someone in your family has recently been diagnosed with motor neurone disease (MND) it is likely that you’re experiencing many confusing and confronting emotions.

Good quality information and support from people who understand MND and its impact are vital at this time. Below are some suggestions about where to start.  You can also contact us, or call our national freecall number 1800 777 175 to talk to your local state MND association.
Collection of MND Australia information resources

What to read

Our practical, up-to-date information resources explain MND and provide useful information about living with the disease. 
  • Facts about MND
  • Factsheets on living better for longer
  • Information for families and young people
See the full list of information resources.


Who to talk with

The MND community is extensive, committed and immensely supportive. We recommend that you contact the MND association in your state in the first instance for support and information based on your needs.

Some state associations host information sessions for people recently diagnosed with MND, and their family and friends. State MND associations can also help to put you in touch with MND clinics, and local health professionals and community care providers who will assist you to live as independently as possible.   

Related links


Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity


MND Australia would like to advise Aboriginal and Torres Strait Islander users that this website may contain images or names of deceased persons.